Reframing care while enduring the traumatic nature of witnessing disrupted family-patient-nurses' relationships during COVID-19.

AIM: To describe the lived experiences of nurses caring for patients and families in the context of COVID-19 in Brazil and United States. DESIGN: A phenomenological philosophical approach following the van Manen analysis method. METHODS: Participants were recruited in Brazil and the United States, including nurses working in health care settings caring for COVID-19 patients. Recruitment used purposive and snowball sampling. Participants completed a demographic survey and semi-structured interviews that were audio-recorded and transcribed for analysis. A cross-cultural examination occurred among researchers from each country. RESULTS: The result was described (n = 35) by the themes, representing the essences of each lifeworld (relationship, time, space and body). The nurses' lived experience was one of reframing care while enduring repeated trauma of witnessing disrupted patient-family-nurse relationships. Themes were as follows: (a) Living a silent and lonely experience; (b) Providing connectedness for disrupted patient and family relationships; (c) Feeling the burden of the demands; (d) Being a helping connector; (e) Reshaping spaces amidst evolving interventions and policies; (f) Creating safe spaces, surrounded by turmoil, threat, and distress within an unsafe environment; (g) Reorganizing care and reframing time; (h) Reconciling losses, regrets, victories and lessons. CONCLUSION: The nurses' lived experience of caring for patients and families during the COVID-19 pandemic prompted the need to respond to repeated traumas and distress posed by interrupted patient-family and nurse-own family relationships, vulnerable bodies, threatened space and dynamic and volatile time. IMPACT: Cultural nuances were discovered depending on the practice setting, political discourse and the autonomy of the nurse. Innovative models of care that create structures and processes to support nurses in caring for patients in threatening environments and the commitment to connecting family members have potential to contribute to the ongoing health of the nursing profession.

Ethical and Moral Conflicts in the Nursing Care of Pediatric Patients With Cancer and Their Families.

BACKGROUND: Pediatric oncology nurses encounter ethical and moral dilemmas when providing comprehensive care to pediatric patients with cancer and their families. OBJECTIVE: The aim of this study was to explore ethical and moral conflicts arising in the field of pediatric oncology from the perspective of nursing professionals. METHOD: This qualitative secondary analysis was conducted with 10 nursing professionals from a pediatric cancer hospital through semistructured interviews and analyzed using thematic data analysis. RESULTS: Two themes emerged: (1) living with conflicts intrinsic to the relationships , which describes multiple sources of conflict in the relationships of nursing professionals with the team, with the family, and with seriously ill children, summarizing trigger-sensitive topics to be addressed for its mediation; (2) developing moral resilience , which represents how nurses reframe the conflicts and make use of strategies to avoid being personally harmful. CONCLUSIONS: The results highlight the challenging work environment of pediatric oncology, recognizing the multiple natures of sensitive topics to nursing professionals during clinical decision making and the incipient strategies in dealing with ethical and moral conflicts. IMPLICATIONS FOR PRACTICE: This study reveals self-reflection and intuitive strategies as protective factors, which could be applied as a step to support nurses encountering ethical and moral conflicts in pediatric oncology daily practice. Furthermore, because of the limited support services for nursing professionals, it is necessary to foresee institutional policies to embrace the development of moral resilience.

Transition from disease to survival: accounts of adolescents who have experienced cancer.

OBJECTIVE: to understand the transition from disease to survival of adolescents who had experienced cancer. METHOD: qualitative study, developed with the theoretical framework of symbolic interactionism, conducted with 14 adolescent cancer survivors treated at an outpatient clinic after cancer therapy, in the city of São Paulo. Individual in-depth interviews were performed and recorded, and the data were analyzed and interpreted using the methodological framework of the thematic analysis. RESULTS: four themes were identified: going back to school, being able to live like other adolescents, living in the present moment, and seeking a purpose in life. CONCLUSION: the transition from disease to cancer survival was full of insecurities, difficulties, and challenges. After the disease, survivors acquire new values and new priorities in life, a reconstruction of the self. They also feel thankful to God and the people who were part of their treatment journey. HIGHLIGHTS: (1) Cancer survivors need long-term follow-up.(2) Health professionals are not prepared to support survivors.(3) Adolescents see survival as a new opportunity and feel gratitude.(4) Adolescents seek meaning in their survival.(5) Support planning is important to help in the transition period.

Living in COVID's Disbeliefs, Media, and Fear: Nurses in Brazil and the United States Share Their Experiences.

During the COVID-19 pandemic, nurses were placed in an unprecedented context in which they engaged with community members, family members, and friends while positioned between dire hospital situations and community disbelief about the seriousness of the pandemic, often along political lines. A secondary analysis of a qualitative study exploring experiences of 39 nurses in the United States and Brazil in engaging with the community and political discourse during the pandemic provided insights into the impact of these interactions on nurses, and implications for how nurses may emerge from this pandemic time stronger and more supported by those in administrative positions.

Step-by-step approach to reopening a Brazilian higher education institution during the COVID-19 pandemic.

OBJECTIVES: to describe the experience of reopening a Brazilian higher education institution during the COVID-19 pandemic. METHODS: experience report of a step-by-set approach to reopening a nursing higher education institution in São Paulo, Brazil, from May 2020 to May 2021. RESULTS: the plan was created and operated by a group including students, professors, and technical-administrative workers. Weekly or by-weekly meetings occurred according to changes in the epidemiological situation and the needs to review the local technical and political agreements. CONCLUSIONS: we suggest that reopening plans during the COVID-19 pandemic should be politically and technically legitimated by all members of the community of a higher education institution so that they can take place quickly and sustainably. The early identification of COVID-19 cases and the adoption of local administrative measures are necessary to reduce the risk of outbreaks.

Transition from disease to survival: accounts of adolescents who have experienced cancer / A transição da doença para a sobrevivência: relatos de adolescentes que vivenciaram o câncer / La transición de la enfermedad a la supervivencia: testimonios de adolescentes que han sufrido cáncer

Abstract Objective: to understand the transition from disease to survival of adolescents who had experienced cancer. Method: qualitative study, developed with the theoretical framework of symbolic interactionism, conducted with 14 adolescent cancer survivors treated at an outpatient clinic after cancer therapy, in the city of São Paulo. Individual in-depth interviews were performed and recorded, and the data were analyzed and interpreted using the methodological framework of the thematic analysis. Results: four themes were identified: going back to school, being able to live like other adolescents, living in the present moment, and seeking a purpose in life. Conclusion: the transition from disease to cancer survival was full of insecurities, difficulties, and challenges. After the disease, survivors acquire new values and new priorities in life, a reconstruction of the self. They also feel thankful to God and the people who were part of their treatment journey.

Resumo Objetivo: conhecer a transição da doença para a sobrevivência de adolescentes que vivenciaram o câncer. Método: estudo de abordagem qualitativa, desenvolvido por meio do referencial teórico Interacionismo Simbólico, realizado com 14 adolescentes sobreviventes de câncer atendidos em um ambulatório de pacientes fora de terapia na cidade de São Paulo (SP). Foram realizadas e gravadas entrevistas individuais e em profundidade e os dados foram analisados e interpretados pelo referencial metodológico da análise temática. Resultados: quatro temas foram identificados: voltando para a escola; podendo viver como outros adolescentes; vivendo o agora e buscando um propósito na vida. Conclusão: a transição da doença para a sobrevivência do câncer se revelou cheia de inseguranças, dificuldades e desafios. Após a doença, os sobreviventes adquirem novos valores e novas prioridades de vida; uma reconstrução do self; além do sentimento de gratidão a Deus e às pessoas que participaram da trajetória percorrida durante o tratamento.

Resumen Objetivo: conocer la transición entre la enfermedad y la supervivencia de adolescentes que han sufrido cáncer. Método: estudio con enfoque cualitativo, desarrollado a través del referencial teórico del Interaccionismo Simbólico, realizado con 14 adolescentes supervivientes de cáncer atendidos en un ambulatorio, sin terapia, de la ciudad de São Paulo (SP). Se realizaron y grabaron entrevistas en profundidad individuales y los datos fueron analizados e interpretados utilizando el marco metodológico de análisis temático. Resultados: se identificaron cuatro temas: regreso al colegio; poder vivir como otros adolescentes; viviendo el presente y buscando un propósito en la vida. Conclusión: la transición entre la enfermedad y la supervivencia del cáncer se mostró llena de inseguridades, dificultades y desafíos. Después que termina la fase de la enfermedad, los supervivientes adquieren nuevos valores y prioridades en la vida; una reconstrucción del Self; además del sentimiento de gratitud hacia Dios y las personas que participaron del camino recorrido durante el tratamiento.

Step-by-step approach to reopening a Brazilian higher education institution during the COVID-19 pandemic / Abordaje paso a paso para reapertura de institución de enseñanza superior brasileña en la pandemia COVID-19 / Abordagem passo a passo para reabertura de instituição de ensino superior brasileira na pandemia de COVID-19

ABSTRACT Objectives: to describe the experience of reopening a Brazilian higher education institution during the COVID-19 pandemic. Methods: experience report of a step-by-set approach to reopening a nursing higher education institution in São Paulo, Brazil, from May 2020 to May 2021. Results: the plan was created and operated by a group including students, professors, and technical-administrative workers. Weekly or by-weekly meetings occurred according to changes in the epidemiological situation and the needs to review the local technical and political agreements. Conclusions: we suggest that reopening plans during the COVID-19 pandemic should be politically and technically legitimated by all members of the community of a higher education institution so that they can take place quickly and sustainably. The early identification of COVID-19 cases and the adoption of local administrative measures are necessary to reduce the risk of outbreaks.

RESUMEN Objetivos: describir la reapertura de una institución de enseñanza superior brasileña en la pandemia COVID-19. Métodos: informe de las experiencias vividas en el plan de abordaje paso a paso para reapertura de una institución brasileña de enseñanza superior de Enfermería en São Paulo, Brasil, de mayo/2020 a mayo/2021. Resultados: el plan fue construido y puesto en marcha por un grupo con estudiantes, profesores y servidores técnico-administrativos. Las reuniones semanales o quincenales se producían en función de los cambios en el panorama epidemiológico y de la necesidad de revisar los pactos técnicos y políticos locales. Conclusiones: sugerimos que el plan de reapertura se legitime política y técnicamente entre todos los miembros de la comunidad de una institución de enseñanza superior para que se produzca, de manera ágil y sostenida, la identificación precoz de casos y la adopción de medidas administrativas locales encaminadas a reducir el riesgo de brotes.

RESUMO Objetivos: descrever a experiência de reabertura de uma instituição de ensino superior brasileira na pandemia de COVID-19. Métodos: relato das experiências vivenciadas no plano de abordagem passo a passo para reabertura de uma instituição de ensino superior brasileira de Enfermagem em São Paulo, Brasil, no período de maio/2020 a maio/2021. Resultados: o plano foi construído e operacionalizado por um grupo com estudantes, docentes e servidores técnico-administrativos. As reuniões semanais ou quinzenais ocorreram conforme as mudanças no panorama epidemiológico e a necessidade de revisão das ações técnicas e políticas locais. Conclusões: sugerimos que o plano de reabertura na pandemia de COVID-19 seja legitimado política e tecnicamente entre todos os membros da comunidade de uma instituição de ensino superior para que ocorra, de forma ágil e sustentada, a identificação precoce de casos de COVID-19 e a adoção de medidas administrativas locais visando reduzir o risco de surtos.

Suicide in the elderly: an epidemiologic study.

OBJECTIVE: To analyze the incidence and means of elderly suicide in Brazil. METHOD: Epidemiologic, cross-sectional, quantitative, and retrospective study. The data were obtained in a platform maintained by the Ministry of Health and analyzed. The mortality rate was calculated and means and percentages regarding the employed means of suicide were obtained. RESULTS: In this period, 8,977 suicides took place among the population over 60 years. The highest suicide rates were concentrated in the population over 80, which presented a mean 8.4/100,000 for this period, and between 70 and 79 years, with a mean rate of 8.2/100,000. Considering the total elderly population over 60 years, this value reached 7.8/100,000, whereas in the general population this was 5.3/100,000. The values are always higher among the elderly population: the mean rate in the last five years among the elderly is 47.2% higher than the mean for the general population. The main mean of suicide was hanging (68%), followed by firearm (11%), self-intoxication (9%), falling from a high place (5%), and undefined or undetermined means (6%). CONCLUSION: Epidemiologic analyses bring visibility to the dyad aging and suicide, corroborating the pertinence of this theme.

The meaning of nursing 200 years after Nightingale - perceptions of professional practice in the intensivist context.

OBJECTIVES: to know the meaning of contemporary nursing from the experience of intensive care nurses. METHODS: qualitative research based on the theoretical framework of Symbolic Interactionism and the methodological framework of Interpretive Interactionism. The setting was a general hospital in Bahia, being carried out with 12 nurses working in intensive care for at least one year, through semi-structured interviews and drawing-text-theme technique, whose data were organized according to Miles and Huberman and analyzed upon the referential. RESULTS: the sense of being a nurse was evidenced; a being for care, resulting from the experience in intensive care, capable of promoting the development of professional self-image, by causing, in nurses, other skills - besides the scientific ones, such as empathy, creativity, spirituality and compassion. FINAL CONSIDERATIONS: the sense of being a nurse, currently, expresses developments inherited from the Nightingalean proposal, but transcends the technical-managerial emphasis of this to a humanistic care perspective converging with our contemporary professional identity: a being for care.

Suicide in the elderly: an epidemiologic study / Suicidio en ancianos: un estudio epidemiológico / Suicídio em idosos: um estudo epidemiológico

ABSTRACT Objective: To analyze the incidence and means of elderly suicide in Brazil. Method: Epidemiologic, cross-sectional, quantitative, and retrospective study. The data were obtained in a platform maintained by the Ministry of Health and analyzed. The mortality rate was calculated and means and percentages regarding the employed means of suicide were obtained. Results: In this period, 8,977 suicides took place among the population over 60 years. The highest suicide rates were concentrated in the population over 80, which presented a mean 8.4/100,000 for this period, and between 70 and 79 years, with a mean rate of 8.2/100,000. Considering the total elderly population over 60 years, this value reached 7.8/100,000, whereas in the general population this was 5.3/100,000. The values are always higher among the elderly population: the mean rate in the last five years among the elderly is 47.2% higher than the mean for the general population. The main mean of suicide was hanging (68%), followed by firearm (11%), self-intoxication (9%), falling from a high place (5%), and undefined or undetermined means (6%). Conclusion: Epidemiologic analyses bring visibility to the dyad aging and suicide, corroborating the pertinence of this theme.

RESUMEN Objetivo: Analizar la incidencia y los medios de suicidio utilizados por ancianos en Brasil. Método: Estudio epidemiológico, transversal, cuantitativo y retrospectivo. Los datos se obtuvieron de una plataforma del Ministerio de Sanidad y se analizaron. Se calculó el coeficiente de mortalidad y se obtuvieron los promedios y porcentajes de los medios utilizados. Resultados: En el periodo, se produjeron 8.977 suicidios en la población mayor de 60 años. Las tasas de suicidio más elevadas se concentraron en la población mayor de 80 años, que tuvo una media de 8,4/100.000 en el periodo, y entre 70 y 79 años, con una tasa media de 8,2/100.000. Considerando el conjunto de la población anciana mayor de 60 años, la cifra alcanzó el 7,8/100.000, mientras que en la población general fue del 5,3/100.000. Los valores se mantuvieron más altos entre la población anciana: la tasa media de los últimos 5 años entre los ancianos es un 47,2% superior a la media de la población general. El principal medio de suicidio fue el ahorcamiento (68%), seguido de las armas de fuego (11%), la autointoxicación (9%), alturas (5%) y los medios indefinidos o indeterminados (6%). Conclusión: Los análisis epidemiológicos aportan visibilidad al binomio envejecimiento y suicidio, corroborando la relevancia del tema.

RESUMO Objetivo: Analisar a incidência e os meios usados no suicídio de idosos no Brasil. Método: Pesquisa epidemiológica, transversal, quantitativa e retrospectiva. Os dados foram obtidos em uma plataforma do Ministério da Saúde e analisados. Calculou-se o coeficiente de mortalidade e foram obtidas médias e percentuais quanto aos meios utilizados. Resultados: No período, ocorreram 8.977 suicídios na população acima de 60 anos. As taxas de suicídio mais elevadas concentram-se na população acima de 80 anos, que apresentou média de 8,4/100.000 no período, e entre 70 e 79 anos, com taxa média de 8,2/100.000. Considerando-se a totalidade da população idosa acima de 60 anos, o valor chegou a 7,8/100.000, enquanto na população geral ficou em 5,3/100.000. Os valores mantêm-se sempre superiores entre a população idosa: a taxa média dos últimos 5 anos entre idosos é 47,2% superior à média da população geral. O principal meio foi enforcamento (68%), seguido por arma de fogo (11%), autointoxicações (9%), precipitação de lugar elevado (5%) e meios indefinidos ou indeterminados (6%). Conclusão: Análises epidemiológicas trazem visibilidade ao binômio envelhecimento e suicídio, corroborando a pertinência do tema.

The meaning of nursing 200 years after Nightingale - perceptions of professional practice in the intensivist context / El sentido de la enfermería 200 años después de Nightingale- percepciones de la práctica profesional en el contexto intensivista / O sentido da enfermagem 200 anos após Nightingale - percepções da prática profissional no contexto intensivista

ABSTRACT Objectives: to know the meaning of contemporary nursing from the experience of intensive care nurses. Methods: qualitative research based on the theoretical framework of Symbolic Interactionism and the methodological framework of Interpretive Interactionism. The setting was a general hospital in Bahia, being carried out with 12 nurses working in intensive care for at least one year, through semi-structured interviews and drawing-text-theme technique, whose data were organized according to Miles and Huberman and analyzed upon the referential. Results: the sense of being a nurse was evidenced; a being for care, resulting from the experience in intensive care, capable of promoting the development of professional self-image, by causing, in nurses, other skills - besides the scientific ones, such as empathy, creativity, spirituality and compassion. Final Considerations: the sense of being a nurse, currently, expresses developments inherited from the Nightingalean proposal, but transcends the technical-managerial emphasis of this to a humanistic care perspective converging with our contemporary professional identity: a being for care.

RESUMEN Objetivos: conocer el significado de la enfermería contemporánea partiendo de la experiencia de enfermeros de Terapia Intensiva Métodos: investigación cualitativa fundamentada en el referencial teórico del Interaccionismo Simbólico y en el Referencial Metodológico del Interaccionismo Interpretativo. Realizado en un Hospital General de la Bahía, con 12 enfermeros que actúan en la terapia Intensiva hace un año, sometidos a entrevista semiestructurada y al diseño-texto-tema cuyos datos fueron organizados según Miles y Huberman, analizados usando el referencial. Resultados: manifiesta el sentido de ser enfermero, un ser para el cuidado, formado a partir de la experiencia en terapia intensiva, que promueve la elaboración de la autoimagen profesional, al estimular en los enfermeros, otras habilidades además de las científicas, como: empatía, creatividad, espiritualidad y compasión. Conclusiones: el ser enfermero actualmente expresa, desdoblamientos heredados de la iniciativa nightingaliana, que va desde un énfasis técnico-gerencial, a una perspectiva humanística asistencial convergente con nuestra identidad profesional contemporánea: un ser para el cuidado.

RESUMO Objetivos: conhecer o significado da enfermagem contemporânea a partir da experiência de enfermeiros da Terapia Intensiva. Métodos: pesquisa qualitativa sob o referencial teórico do Interacionismo Simbólico e referencial metodológico do Interacionismo Interpretativo, desenvolvida em um hospital geral da Bahia, com 12 enfermeiros da terapia intensiva. Foram realizadas entrevistas semiestruturadas e aplicada a técnica desenho-texto-tema, cujos dados foram organizados segundo Miles e Huberman e analisados mediante o referencial. Resultados: evidenciou-se o sentido de ser enfermeiro; um ser para o cuidado, tecido no decorrer da experiência na terapia intensiva, capaz de promover a elaboração da autoimagem profissional ao mobilizar, nos enfermeiros, outras habilidades para além das científicas, tais como empatia, criatividade, espiritualidade e compaixão. Considerações Finais: o sentido atual de ser enfermeiro expressa desdobramentos herdados da iniciativa nightingaliana, mas transcende a ênfase técnico-gerencial desta para uma perspectiva humanística assistencial convergente com a nossa contemporânea identidade profissional: um ser para o cuidado.

Family management ofchildren who experience sickle cell disease: a qualitative study.

OBJECTIVE: to know the family management experience of children with sickle cell disease in the light of the Family Management Style Framework. METHODS: a qualitative case study carried out between September/2015 and July/2016 with 12 members of eight families registered in a blood center in Minas Gerais. The semi-structured interviews were recorded, and the data were analyzed and interpreted by the hybrid model thematic analysis. RESULTS: three management styles were identified: five families in the accommodating style; two families in the struggling style; and only one family in the enduring style.It was noted that empowerment was paramount in the acquisition of skills and abilities to care for these children. FINAL CONSIDERATIONS: family management knowledge of children with sickle cell disease provided a reflection on nurses' role in supporting, orienting and encouraging the empowerment of these families aiming at the search for comprehensive care.

Soul care in the hospital nursing context: an analysis based on Transpersonal Caring.

OBJECTIVE: To unveil spirituality in the care process of nursing professionals in the hospital context under the lens of Transpersonal Caring. METHOD: A descriptive-exploratory study implementing a qualitative approach conducted with professionals from the nursing team in a general hospital in Bahia, using a semi-structured interview submitted to the content analysis technique and analyzed from the perspective of the Theory of Transpersonal Caring theoretical framework. RESULTS: There were 16 professionals who participated. It was found that the nursing team perceives the patient and family's demand for spiritual care, and sometimes even has experiences and suggestions for interventions, especially those which cultivate faith and spirituality, but this does not happen with most of these professionals who demonstrate difficulties, unpreparedness and fear of taking on such care responsibility. CONCLUSION: There is a need to develop better interaction/spiritual care skills by nursing professionals in the challenging context of the search for meaning, faith and hope mobilized by the disease experience. The Systematization of Spiritual Nursing Care and Transpersonal Caring stand out as appropriate devices, which provide consistent subsidies for undertaking spiritual care.

The Evolutionary Nature of Parent-Provider Relationships at Child's End of Life With Cancer.

Relationship strains between families and providers can have intense repercussions on the bereavement experience. Little is known about how to define and differentiate relationships within various interpersonal contexts and how those families manifest their bereavement. Therefore, the purpose of this study was to understand parental experiences about their relationships with providers at their child's end of life with cancer and describe the manifestations of their grief. In this hermeneutic study, data were collected through interviews with bereaved parents and observation of families and health care providers in the hospital setting. Parents variously experienced complex relationships characterized by support, collaboration, trust, silence, deterioration, hierarchy, and tolerating, which were interchangeable and varied overtime, as new meanings were incorporated into their experiences. Through better understanding of the nature of these relationships, nurses can provide leadership in research and practice for identifying consequences of their care.

Family Management and socioeconomic situation of children and adolescents with neurological disorders.

OBJECTIVES: to identify the relation between family management and socioeconomic situation of children and adolescents with neurological disorders. METHODS: a descriptive and correlational study with 141 family members who answered a questionnaire on socioeconomic and family management information. Data collection took place between May and September 2016 in a pediatric neurology center. A descriptive and analytical analysis was carried out with the use of statistical tests in order to assess the relation of the variables researched. RESULTS: a higher early childhood disease time was related with higher scores of management difficulty. There was relation between the highest family income and management skills and the lowest scores of family difficulty. The highest schooling level of mothers was associated with the lowest scores of disease impact view and family difficulty. CONCLUSIONS: family members with unfavorable socioeconomic situation had more difficulty with family management.

Soul care in the hospital nursing context: an analysis based on Transpersonal Caring / Atención del alma en el contexto de enfermería hospitalaria: un análisis basado en la Atención Transpersonal / O cuidado da alma no contexto hospitalar de enfermagem: uma análise fundamentada no Cuidado Transpessoal

Abstract Objective: To unveil spirituality in the care process of nursing professionals in the hospital context under the lens of Transpersonal Caring. Method: A descriptive-exploratory study implementing a qualitative approach conducted with professionals from the nursing team in a general hospital in Bahia, using a semi-structured interview submitted to the content analysis technique and analyzed from the perspective of the Theory of Transpersonal Caring theoretical framework. Results: There were 16 professionals who participated. It was found that the nursing team perceives the patient and family's demand for spiritual care, and sometimes even has experiences and suggestions for interventions, especially those which cultivate faith and spirituality, but this does not happen with most of these professionals who demonstrate difficulties, unpreparedness and fear of taking on such care responsibility. Conclusion: There is a need to develop better interaction/spiritual care skills by nursing professionals in the challenging context of the search for meaning, faith and hope mobilized by the disease experience. The Systematization of Spiritual Nursing Care and Transpersonal Caring stand out as appropriate devices, which provide consistent subsidies for undertaking spiritual care.

Resumen Objetivo: Desvelar la espiritualidad en el proceso de cuidado de los profesionales de enfermería en el contexto hospitalario bajo las lentes del Cuidado Transpersonal. Método: Estudio descriptivo-exploratorio del abordaje cualitativo realizado con profesionales del equipo de enfermería en un hospital general da Bahia a través de entrevista semiestructurada sometida a la técnica de análisis del contenido y analizada a la luz del referencial teórico de la Teoría del Cuidado Transpersonal. Resultados: Participaron 16 profesionales y se ha verificado que el equipo de la enfermería percibe la demanda del cuidado espiritual del paciente y de la familia, y a veces hasta tiene experiencias y sugerencias de intervenciones sobre todos aquellos que cultivan fe y espiritualidad, lo que no acontece con la mayoría de esos profesionales que presenta dificultades, despreparo y temen asumir tal asistencia. Conclusión: Existe necesidad de desarrollo de mejores habilidades de interacción/asistencia espiritual por los profesionales de enfermería frente a lo desafiante contexto de procura de sentido, fe y esperanza movilizados pela experiencia de la enfermedad. Se destacan como dispositivos oportunos la Sistematización de la Asistencia Espiritual a la Enfermería y el Cuidado Transpersonal, que proporcionan subsidios consistentes al desarrollo del cuidado espiritual.

Resumo Objetivo: Desvelar a espiritualidade no processo de cuidado dos profissionais de enfermagem no contexto hospitalar sob as lentes do Cuidado Transpessoal. Método: Estudo descritivo-exploratório de abordagem qualitativa realizado com profissionais da equipe de enfermagem em um hospital geral da Bahia, mediante entrevista semiestruturada submetida à técnica de análise de conteúdo e analisada à luz do referencial teórico da Teoria do Cuidado Transpessoal. Resultados: A partir dos 16 participantes do estudo verificou-se que a equipe de enfermagem percebe no paciente e na sua família uma demanda de cuidado espiritual. Todavia, embora alguns destes profissionais desenvolvam experiências e sugestões neste contexto de cuidados, motivados, sobretudo, pelo cultivo pessoal da fé e espiritualidade, a maioria demonstra expressiva dificuldade, despreparo e temor em assumir tal assistência. Conclusão: Existe necessidade de desenvolvimento de melhores habilidades de interação/assistência espiritual pelos profissionais de enfermagem frente ao desafiador contexto da procura de sentido, fé e esperança mobilizados pela experiência da doença. Destacam-se, como dispositivos oportunos a Sistematização da Assistência Espiritual de Enfermagem e o Cuidado Transpessoal, os quais fornecem subsídios consistentes ao empreendimento do cuidado espiritual.

Music as a transpersonal care tool - perceptions of hospitalized people assisted in the university extension / La música como instrumento de cuidado transpersonal - percepciones de individuos hospitalizados asistidos en la extensión universitaria / A música como instrumento de cuidado transpessoal - percepções de indivíduos hospitalizados assistidos na extensão universitária

ABSTRACT Objective: to analyze the perception of hospitalized patients about the care received through an extensionist musical visit under the perspective of the Theory of Human Caring. Method: a descriptive-exploratory-qualitative research conducted in a hospital of the state of Bahia, with 15 hospitalized patients, interviewed within 24 hours after receiving the extensionist musical visit. Collection involved semi-structured interview, analyzed through Discourse of the Collective Subject. Results: three axes emerged: Musical Care at the interface with Transpersonal Care; Music as a rescue element of hope during hospitalization; and Beyond music - a meeting between care, art and human relations. The results show the feelings evoked during the experience of the musical visit and emphasize the importance of this activity. Conclusion and Implications for the practice: music as a Transpersonal Care strategy motivates patient-staff-family ties, encouraging optimism and hope by mobilizing feelings and sensations of body, mind and soul, enabling the emergence of resilient behaviors during the hospitalization process. The study promotes reflection and guidance for the most creative, sensitive and bold care in the hospital environment. It suggests greater use of music by the health staff - meeting a care extended to human needs that transcend the physical.

RESUMEN Objetivo: analizar la percepción de los pacientes hospitalizados sobre la atención recibida a través de una visita musical extensionista bajo la lente de la Teoría del Cuidado Transpersonal. Método: investigación descriptiva-exploratoria-cualitativa, realizada en un hospital de Bahia con 15 pacientes hospitalizados entrevistados hasta 24 horas después de haber recibido la visita musical extensionista. La recolección involucró entrevista semiestructurada, analizada mediante Discurso del Sujeto Colectivo. Resultados: convergieron en 3 ejes: Cuidado Musical en la interfaz con el Cuidado Transpersonal; La música como elemento de rescate de la esperanza durante la hospitalización; y, además de la música - un encuentro entre cuidado, arte y relaciones humanas. Estos mostraron los sentimientos evocados durante la vivencia de la visita musical y resaltaron la importancia de esta actividad. Conclusión e Implicaciones para la práctica: la música como estrategia de Cuidado Transpersonal motiva los vínculos entre paciente-equipo-familia, estimulando optimismo y esperanza al movilizar sentimientos y sensaciones del cuerpo, mente y alma, posibilitando la emersión de comportamientos resilientes durante el proceso de hospitalización. El estudio promueve reflexión y orientación para un cuidado más creativo, sensible y audaz en el ambiente hospitalario, sugiriendo un mayor uso de la música por el equipo de salud al encuentro de un cuidado ampliado a las necesidades humanas que trascienden a las físicas.

RESUMO Objetivo: analisar a percepção de pacientes hospitalizados sobre o cuidado recebido por meio de uma visita musical extensionista sob as lentes da Teoria do Cuidado Transpessoal. Método: pesquisa descritivo-exploratória-qualitativa realizada em um hospital baiano, com 15 pacientes hospitalizados, entrevistados até 24 horas após terem recebido a visita musical extensionista. A coleta envolveu entrevista semiestruturada, analisada mediante Discurso do Sujeito Coletivo. Resultados: emergiram 3 eixos: Cuidado Musical na interface com o Cuidado Transpessoal; A música como elemento de resgate da esperança durante a hospitalização; e Para além da música - um encontro entre cuidado, arte e relações humanas. Os resultados mostram os sentimentos evocados durante a vivência da visita musical e ressaltam a importância desta atividade. Conclusão e Implicações para a prática: a música como estratégia de cuidado transpessoal motiva os vínculos entre paciente-equipe-família, estimulando otimismo e esperança ao mobilizar sentimentos e sensações do corpo, da mente e da alma, viabilizando a emersão de comportamentos resilientes durante o processo de hospitalização. O estudo promove reflexão e orientação para o cuidado mais criativo, sensível e ousado no ambiente hospitalar, sugerindo maior uso da música pela equipe de saúde - ao encontro de um cuidado ampliado às necessidades humanas que transcendem as físicas.

Family management ofchildren who experience sickle cell disease: a qualitative study / Manejo familiar de niños que experimentanenfermedad decélulas falciformes: um estúdio cualitativo / Manejo familiar de crianças que vivenciam a doença falciforme: um estudo qualitativo

ABSTRACT Objective: to know the family management experience of children with sickle cell disease in the light of the Family Management Style Framework. Methods: a qualitative case study carried out between September/2015 and July/2016 with 12 members of eight families registered in a blood center in Minas Gerais. The semi-structured interviews were recorded, and the data were analyzed and interpreted by the hybrid model thematic analysis. Results: three management styles were identified: five families in the accommodating style; two families in the struggling style; and only one family in the enduring style.It was noted that empowerment was paramount in the acquisition of skills and abilities to care for these children. Final considerations: family management knowledge of children with sickle cell disease provided a reflection on nurses' role in supporting, orienting and encouraging the empowerment of these families aiming at the search for comprehensive care.

RESUMEN Objetivo: conocerl a experiencia de gestión familiar de niños con anemia falciforme a la luz del marco teórico Family Management Style Framework. Métodos: estudio de caso cualitativo, realizado entre septiembre/2015 y julio/2016 con 12 miembros de ocho familias registradas e nun centro de sangre en Minas Gerais. Las entrevistas semiestructuradas fueron grabadas y los datos analizados e interpretados por el modelo híbrido de análisis temático. Resultados: se identificar ontres estilos de gestión: cinco famílias e nel estilo accommodating (complacente); dos famílias em el estilo struggling (lucha); y solo una família e nel estilo enduring (tolerante). Frente a los estilos, se observó que el empoderamiento era primordial en la adquisición de habilidades y destrezas para el cuidado de estos niños. Consideracionesfinales: el conocimiento sobre el manejo familiar de los niños con enfermedad de células falciformes llevó a una reflexión sobre el papel de La enfermera en el apoyo, orientación y estímulo del empoderamiento de estas famílias con el objetivo de buscar una atención integral.

RESUMO Objetivo: conhecer a experiência de manejo familiar de crianças com doença falciforme à luz do referencial teórico Family Management Style Framework. Métodos: estudo de caso qualitativo, realizado entre setembro/2015 e julho/2016 com 12 membros de oito famílias cadastradas em um hemocentro mineiro. As entrevistas semiestruturadas foram gravadas e os dados analisados e interpretados pelo modelo híbrido de análise temática. Resultados: três estilos de manejo foram identificados: cinco famílias no estilo accommodating (acomodando); duas famílias no estilo struggling (lutando); e apenas uma família no estilo enduring (tolerante). Frente aos estilos, notou-se que o empoderamento foi primordial na aquisição de habilidades e capacidades para o cuidado dessas crianças. Considerações finais: o conhecimento sobre o manejo familiar de crianças com doença falciforme propiciou a reflexão sobre a atuação do enfermeiro no apoio, orientações e estímulo para o empoderamento destas famílias visando à busca de um cuidado integral.

Family management ofchildren who experience sickle cell disease: a qualitative study / Manejo familiar de niños que experimentanenfermedad decélulas falciformes: um estúdio cualitativo / Manejo familiar de crianças que vivenciam a doença falciforme: um estudo qualitativo

ABSTRACT Objective: to know the family management experience of children with sickle cell disease in the light of the Family Management Style Framework. Methods: a qualitative case study carried out between September/2015 and July/2016 with 12 members of eight families registered in a blood center in Minas Gerais. The semi-structured interviews were recorded, and the data were analyzed and interpreted by the hybrid model thematic analysis. Results: three management styles were identified: five families in the accommodating style; two families in the struggling style; and only one family in the enduring style.It was noted that empowerment was paramount in the acquisition of skills and abilities to care for these children. Final considerations: family management knowledge of children with sickle cell disease provided a reflection on nurses' role in supporting, orienting and encouraging the empowerment of these families aiming at the search for comprehensive care.

RESUMEN Objetivo: conocerl a experiencia de gestión familiar de niños con anemia falciforme a la luz del marco teórico Family Management Style Framework. Métodos: estudio de caso cualitativo, realizado entre septiembre/2015 y julio/2016 con 12 miembros de ocho familias registradas e nun centro de sangre en Minas Gerais. Las entrevistas semiestructuradas fueron grabadas y los datos analizados e interpretados por el modelo híbrido de análisis temático. Resultados: se identificar ontres estilos de gestión: cinco famílias e nel estilo accommodating (complacente); dos famílias em el estilo struggling (lucha); y solo una família e nel estilo enduring (tolerante). Frente a los estilos, se observó que el empoderamiento era primordial en la adquisición de habilidades y destrezas para el cuidado de estos niños. Consideracionesfinales: el conocimiento sobre el manejo familiar de los niños con enfermedad de células falciformes llevó a una reflexión sobre el papel de La enfermera en el apoyo, orientación y estímulo del empoderamiento de estas famílias con el objetivo de buscar una atención integral.

RESUMO Objetivo: conhecer a experiência de manejo familiar de crianças com doença falciforme à luz do referencial teórico Family Management Style Framework. Métodos: estudo de caso qualitativo, realizado entre setembro/2015 e julho/2016 com 12 membros de oito famílias cadastradas em um hemocentro mineiro. As entrevistas semiestruturadas foram gravadas e os dados analisados e interpretados pelo modelo híbrido de análise temática. Resultados: três estilos de manejo foram identificados: cinco famílias no estilo accommodating (acomodando); duas famílias no estilo struggling (lutando); e apenas uma família no estilo enduring (tolerante). Frente aos estilos, notou-se que o empoderamento foi primordial na aquisição de habilidades e capacidades para o cuidado dessas crianças. Considerações finais: o conhecimento sobre o manejo familiar de crianças com doença falciforme propiciou a reflexão sobre a atuação do enfermeiro no apoio, orientações e estímulo para o empoderamento destas famílias visando à busca de um cuidado integral.

Family Management and socioeconomic situation of children and adolescents with neurological disorders / Manejo Familiar y situación socioeconómica de niños y adolescentes con trastornos neurológicos / Manejo Familiar e situação socioeconômica de crianças e adolescentes com distúrbios neurológicos

ABSTRACT Objectives: to identify the relation between family management and socioeconomic situation of children and adolescents with neurological disorders. Methods: a descriptive and correlational study with 141 family members who answered a questionnaire on socioeconomic and family management information. Data collection took place between May and September 2016 in a pediatric neurology center. A descriptive and analytical analysis was carried out with the use of statistical tests in order to assess the relation of the variables researched. Results: a higher early childhood disease time was related with higher scores of management difficulty. There was relation between the highest family income and management skills and the lowest scores of family difficulty. The highest schooling level of mothers was associated with the lowest scores of disease impact view and family difficulty. Conclusions: family members with unfavorable socioeconomic situation had more difficulty with family management.

RESUMEN Objetivos: identificar la correlación entre el manejo familiar y el estado socioeconómico de niños y adolescentes con trastornos neurológicos. Métodos: estudio descriptivo y correlacional con 141 miembros de la familia, que respondieron un cuestionario sobre información socioeconómica y gestión familiar. La recopilación de datos tuvo lugar entre mayo y septiembre de 2016 en un Centro de Neurología Pediátrica. Se realizó un análisis descriptivo y analítico utilizando pruebas estadísticas para evaluar la correlación entre las variables investigadas. Resultados: la mayor duración de la enfermedad infantil y juvenil se correlacionó con una mayor puntuación de dificultad de manejo. El mayor ingreso familiar se relacionó con un puntaje de habilidad gerencial más alto y un puntaje de dificultad familiar más bajo. La educación materna superior se asoció con una puntuación de visión más baja del impacto de la enfermedad y la dificultad familiar. Conclusiones: las familias en la situación socioeconómica más desfavorable tuvieron mayores dificultades en el manejo familiar.

RESUMO Objetivos: identificar a correlação entre o manejo familiar e a situação socioeconômica de crianças e adolescentes com distúrbios neurológicos. Métodos: estudo descritivo, correlacional, com participação de 141 familiares, os quais responderam a um questionário sobre informações socioeconômicas e do manejo familiar. A coleta de dados ocorreu entre maio e setembro de 2016, em um Centro de Neurologia Pediátrica. Realizou-se análise descritiva e analítica, com uso de testes estatísticos para avaliar a correlação entre as variáveis investigadas. Resultados: o maior tempo de doença infanto-juvenil foi correlacionado a um maior escore de dificuldade de manejo. A maior renda familiar foi relacionada ao maior escore de habilidade de manejo e ao menor escore de dificuldade familiar. A maior escolaridade materna associou-se ao menor escore de visão do impacto da doença e dificuldade familiar. Conclusões: as famílias em situação socioeconômica mais desfavorável tiveram maiores dificuldades no manejo familiar.